Having A Urostomy: The Best & Worst Parts

Lynn Richardson SecuriCare Blogger

Unfortunately I found myself in hospital again recently with yet another Urinary Tract Infection (UTI). Whilst there, a patient in the bed opposite told me she wished she had never had her urostomy done. This made me reflect on how I feel about having my Ileal Conduit. I always try to see the positive side of things, so decided to make a list of 5 good things about having a urostomy and 5 not-so-good things.

5 good things about having a Urostomy (Ileal Conduit):

  1. Not having to get up to visit the bathroom at night. After years of night time visits to the loo, it’s great to be able to attach my pouch to a night bag and not have to worry about a disturbed sleep. My husband envies me my night bag sometimes!
  2. Not having to touch less-than-clean public toilets. In my experience, disabled toilets are usually cleaner than other public toilets - probably because they are not as heavily used (although others may not agree). If I am desperate to empty my pouch in a mucky toilet, at least I don’t have to touch anything – so long as my aim is good!
  3. Travelling light. Before my surgery I had to carry at least one change of clothes with me, depending on how long I was going to be out. Now I usually just need a small bag concealed in my handbag with a change of appliances, just in case.
  4. A new lease of life. Having my urostomy has really given me my life back. I have much more energy and enthusiasm now.
  5. Enjoying going out. It’s so good to be able to go out without having to worry about where the nearest toilets are. When they were little, my sons were expert ‘toilet spotters’!

5 not-so-good things about having a Urostomy (Ileal Conduit):

  1. Leaks. Fortunately I don’t get too many leaks, but when they do happen they make me feel smelly and uncomfortable. I have had to resort to buying new leggings and underwear when I’ve been out.
  2. Urinary Tract Infections. Unfortunately I am prone to regular UTIs that result in me being hospitalized, as I am allergic to many antibiotics.
  3. Airport security – a personal bugbear of mine. I’d love to give the security staff some training on how to deal sensitively with people with an Ileal Conduit.
  4. Uhm…..
  5. Uhmmmmm………

All-in-all, in my opinion, there are so many more good points about having a urostomy than there are not-so-good. Long may that continue!

by Lynne Richardson

Lynne Richardson

About the author

I have had a urostomy since 2012 and will be sharing some of my personal experiences and thoughts as an ostomate.

Recent Comments

  • JANET WHITE

    Just home after urostomy, 25th Sept 2019, all new to me at the moment, any advice would be welcome
    Thanks

  • SecuriCare_Team

    Hi Janet,

    You are most welcome to give the SecuriCare team a call for advice on 0800 318 965.

    We have information available on our website, including this section: https://www.securicaremedical.co.uk/advice-and-support/stoma-care just click on the titles on the left hand side (if using pc) and the options will drop down.

    Please also check out our support group section: https://www.securicaremedical.co.uk/advice-and-support/resources/support-groups

    SecuriCare hold regular events around the country which give you the chance to meet with fellow ostomates and hear about products that could help you better care for your stoma. Our sister company, CliniMed, also hold regular events:

    https://www.securicaremedical.co.uk/events
    https://www.clinimed.co.uk/events

    Facebook is home to many online support groups and your Stoma Care Nurse should be able to advise you of local community support.

    Best of luck.

  • Earl Holder

    I had a urostomy operation about 3 years ago, It went well. I had some small leaks a few times. I have a little zippered pouch with 2 changes of my apparatus. It never leaves my pickup. The pharmacy had messed up on one of my orders. I have 4 full boxes...5 units per box...plus 4 extra units...of the concave wafers. I never noticed the wafers were concave until I opened one box. So I threw the one unit I took out of the envelope away. My stoma protrudes above my skin. I have 3-one piece wafer/pouch units, and two tubes of Adapt Paste, unopened. I changed to the Barrier Adapt Ceraring I would recommend the Ceraring to everyone. Is there is a place I can send unused / un-needed supplies, where they would get handed out to someone? I would appreciate any info you might have as to what I can do with my extra items. I have enjoyed your postings of other people and their experiences. I never dreamed some procedures could be so troublesome. Thanks

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