Why You Should Share Your Stoma Story

Why You Should Share Your Stoma Story

“There is no greater agony than bearing an untold story inside you.” - Maya Angelou

I’ve lived with Crohn’s disease for nearly 10 years now. Over those years I have had many funny, sad, depressing and sometimes baffling experiences. Some I would regale to anyone who would listen but some were just too embarrassing to tell. These were just memories, moments recorded in my cerebral cortex, locked away maybe never to be remembered again.

When I joined the #GetYourBellyOut campaign (about 2 years ago) I was amazed at all the people sharing their stories. Some stories I could connect with, some opened my eyes to how lucky I actually was with the condition.

I would comment little snippets here and there, just to feel involved and to let the person posting know they were not alone. But I soon felt that a 5 minute comment did not justify the journey I had taken. I realised that everyone has a story and I wanted to tell mine.

Reliving my Crohn’s journey through writing my story

So I sat down in front of a laptop, a blank document on screen, and began to write. I proceeded to relive my years with Crohn’s and all the crap that came with them (no pun intended). I remembered moments I had forgotten…often just the little things. I would laugh at some and ponder over others.

As all the memories came back, I just typed and typed. This was not all in one sitting but over a series of weeks. The more I wrote, the more driven I became to finish.

When my story was all written down, I knew I needed to publish it somewhere. I opened a blog site, posted it as one blog, and then shared it wherever I could. You can read it here.

Writing your story can help yourself and others

Initially, I just wanted to express what I had been through and to be able to share this with the #GetYourBellyOut group. Writing it all down helped me come to terms with what I have been through and what challenges I overcame. I would never have even reflected on most of it had I not put my fingers to the keyboard.

However, my blog post also became an excellent resource for others to see that they were not alone in their feelings and fears. I have had people thank me for talking about it because they said it made them feel normal. They said they felt a sense of realisation of what they had lived through. People have even asked if I will please write more. One day I will.

I would like to inspire others to do the same. So maybe give this a go yourself. Write your story down and, if you feel confident enough, publish it. Either way, it might just remind you how much of a survivor and a fighter you are.

If Nick has inspired you to write your own stoma story, we would love to read it. Send your blogs to web.enquiries@securicaremedical.co.uk and we might even feature yours on the SecuriCare website!

Writing your stoma story down can remind you how much of a fighter you are, and sharing it online can help others

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by Nick Axtell

Nick Axtell

About the author

Hi I'm Nick. Diagnosed with Crohn's in 2006, gained a Stoma in 2010 and Completion Proctectomy November 2015. I have a family with 2 girls and a somewhat unusual sense of humour, which I hope will come across in my blogs. I am trying to live my life to the fullest and not let my stoma get in the way.

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